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Epilepsy
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Definition of Epilepsy
Epilepsy is any of various neurological disorders characterized by sudden recurring attacks of motor, sensory, or psychic malfunction with or without loss of consciousness or convulsive seizures.
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Randy Siegel: Getting out the epilepsy story
MY COLUMN “More than hugs,” which appeared in the Aug. 23 Newsweek.com, is a story about our daughter, Rebecca, who we hope can one day “enjoy her pasta in peace.” But today, as with every day of her young life, Rebecca struggles with epilepsy
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Halloween Selections for Children on the Ketogenic Diet and Families who Enjoy Sprucing-up Tradition
Pumpkins, bright red leaves on trees, scarecrows, and Halloween costumes – all are certain signs of autumn. For parents it is a time of too many holidays approaching. But for children, October means Halloween. The stores are filled with costumes, masks, and candy, more candy, and even more candy.
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Warren Lammert Writes Foreword to Newly Released Book from The Brainstorm Series
For me epilepsy started nearly nine years ago with a call from my wife Kathy while I was attending an investment conference in California, 1000 miles from home. Sylvie, our 8-month-old daughter, had experienced two seizures and was in the emergency room at Children’s Hospital in Denver. I left the conference and drove through heavy Los Angeles traffic going as fast as I could in the carpool lane, narrowly making the last flight back to Denver.
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Questions? Our Resource Specialist is Here to Help | An Interview with Patricia Osborne Shafer
While only a doctor can tell people what to do in specific situations, I can help people think about where to find information about certain drugs, how to monitor their use, and what side effects to look for.
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My Son Was Diagnosed with Infantile Spasms | An Interview with Mike Bartenhagen
Broc was diagnosed with Infantile Spasms (IS) when he was 6 months old. After we returned home from the hospital, I went right to the Internet to find out whatever I could about IS. The things I read about what the future could hold for my child were not what I wanted to hear about.
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"A Self-Portrait by Lydia Thompson: The Essay"
I am writing this essay on Lydia’s behalf because she is not capable of writing an essay herself. But I discussed this self-portrait with her to try to discover what she was feeling when she created it. Lydia loves to express herself through art and dance and art class is her favorite subject.
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A sampling of the new epilepsy.com community features:
Community Forum: Dealing with epilepsy can often be difficult. Connecting with others who are going through the same or similar experience can make a world of difference. The epilepsy.com community is designed to be an open place where you can make those connections. Our forum is an online discussion, where participants can ask questions, and share personal experiences, ideas and inspirations. This is your place to discuss topics that matter to you.
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The Inspiration from my Child's World An Interview with Cynthia Folio, PhD
In the spirit of Epilepsy Awareness Month, we are presenting a story of how awareness about epilepsy in written form created increased awareness through the music of Cynthia Folio, PhD, a musician and assistant professor of music theory at Temple University. She first discovered the Brainstorm Series by Dr. Steven Schachter while at camp with her daughter, Lydia, who has tuberous sclerosis.
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Medication alert – Dilantin® 100 mg. Capsules: What Every Person Using This Medication Needs to Know
Dilantin 100 mg capsules are undergoing a transformation. According to Pfizer, the Food and Drug Administration approved manufacturing changes for Dilantin® (phenytoin sodium). Given this change, which was noted in a September 23, 2007, letter to some pharmacists at the corporate level, we have compiled the following information about:
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It’s about the Community: New epilepsy.com features fresh design, content and tools
Epilepsy.com and the web have been a preoccupation and basic element of my life for some 7 years now. In recent years, I have been particularly impressed and excited by the evolution of social networking, of community driven content like wikipedia, and by the power and growth in particular of the epilepsy.com community
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Marilyn Spivack Talks about Brain Injury: The Beginning of a Family Journey
Marilyn Spivack is Neurotrauma Outreach Coordinator at Spaulding Rehabilitation Hospital and Co-founder of the Brain Injury Association of America. This story is adapted from remarks delivered to the CIMIT Brain Injury Symposium on November 15, 2007, which as noted by Marilyn Spivack in her keynote speech, was the "first symposium focused on Traumatic Brain Injury (TBI) in Boston sponsored by such a unique collaborative group, representing the private sector in research, medicine, and rehabilitation; biotechnology and the Department of Defense."
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Post-traumatic Epilepsy in Our Military and Among Civilians
Yes, we are starting to see young veterans who suffered TBI and have recurrent seizures as a consequence. Traumatic brain injury (TBI) is a common cause of epilepsy. Post-traumatic epilepsy (PTE) is the cause of seizures in about 20% of the symptomatic epilepsies. The likelihood of developing PTE is linked to the severity of the TBI. Individuals who are in a coma following TBI, or who suffer a skull fracture or have bleeding within the brain are the people most likely to develop PTE. Even so, unfortunately, we have no way of knowing precisely which individuals who suffer a TBI will develop PTE or when - sometimes it is years before patients start having seizures.
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Medications for Neonatal Seizures and Infantile Spasms
Doctors face special challenges when treating children with epilepsy because of the limited data available to help determine the best use of medications for children of different ages with various types of epilepsy. Recently, however, progress has been made in understanding the use of antiepileptic drugs (AEDs) for treating neonatal seizures and infantile spasms, seizure disorders that occur in the first year of life. The effectiveness of AEDs in treating these conditions has been controversial, and predicting the outcome of these disorders for each child has been difficult, so this kind of progress is welcome.
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Helping your child learn and succeed in school
I find that when teachers first encounter a child with epilepsy, they often begin with false images and beliefs. They may be overly tolerant of the child's behavior because they think it is appropriate for someone with seizures. They may believe that the child will not be able to learn. They may blame poor performance on the behavior or the pills and overlook learning problems caused by the epilepsy itself. But if the parents and child share information with the teacher, very often the same teacher that started with serious reservations about the child's chances for success will become an avid champion of what kids with epilepsy can do. This is what we're facing—trying to reach out to the teachers and help them learn that there is more to epilepsy than medicine.
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