Just What Are Treatment Goals for People Living with Epilepsy?
What are the personal goals of treatment for patients with epilepsy? Are physicians tuned in? Melanie Adams, PA and colleagues compared what physicians think their patients’ treatment goals are versus what they actually are. They presented their most recent research findings today at the American Epilepsy Society 59th Annual meeting in Washington, DC.
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Professionals in Epilepsy Care Symposium:Controversies and Challenges of EEG Monitoring
Washington-Five professionals who care for people with epilepsy shared their thoughts on how to improve the experience of patients who are admitted to the epilepsy monitoring unit. Judy Ahn-Ewing, a registered EEG technician, explained that patients usually come to the hospital for EEG/video monitoring for one of two reasons; to record their seizures in order to make a diagnosis, or to record seizures in preparation for epilepsy surgery. However, patients may feel isolated from their families and jobs while waiting to have seizures in the hospital.
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Sudden Unexplained Death in Epilepsy: What Coroners and Medical Examiners Aren't Saying
Traditionally a controversial topic discussed primarily by the neurological community, sudden unexplained death in epilepsy (SUDEP) is now emerging more frequently in research literature, adding weight and validity to this once questionable entity. However, the forensic science field has quite a ways to go before it both recognizes and utilizes SUDEP as a final post mortem diagnosis in cases where it is appropriate.
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Study Confirms Link Between Seizure Frequency and Menstruation in Some Women
According to Andrew Herzog, M.D., MSc, Director of the Harvard Neuroendocrine Unit, Beth Israel Deaconess Medical Center, Boston, MA, the idea of a relationship between seizure frequency and a woman’s menstrual cycle, known as catamenial epilepsy, dates back more than a century to Sir William Richard Gowers, an eminent British neurologist who wrote a textbook considered at the time to be ‘The Bible of Neurology’. Herzog’s presentation at the 58th Annual Meeting of the American Academy of Neurology, San Diego, further characterizes the relationship between seizures and a woman’s menstrual cycle.
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New Study Highlights Decreased Quality of Life in Patients with Epilepsy and Comorbid Medical and Psychiatric Conditions
Often times, living with epilepsy means not only wading through seizures, various drug treatments and side effects, but other medical and psychiatric condition as well. Some of the most frequent medical conditions such as asthma, migraine, and heart disease, to name a few, are two to five times more likely to occur in adults with epilepsy. So, how do epilepsy and comorbid medical and psychiatric conditions impact the quality of life of people with these disorders?
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Providing Help to Providers
Child-care providers can help children with special needs, like those with epilepsy. But who provides help to the child-care provider?
Agencies like Crystal Stairs. The Los Angeles-based child-care and development agency has about 350 staff members to assist family child-care centers and homes.
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Respite Care: Lending a Hand to Caregivers
Respite (RES-pit) care is short-term, temporary care provided to people with disabilities so that their family members can take a break from the daily routine of caregiving. Since caring for a person with serious disabilities is often stressful, taking a vacation, or even just taking a few hours off, can be invaluable. Respite is often referred to as a "gift of time."
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College Years and Epilepsy
It's finally time to get ready to go off to college. You have lots of questions about how your seizures will affect your college life. Should you tell your roommate and your new friends about the epilepsy? Should the school health service or teachers know you have seizures? How will studying late or all-night partying affect your epilepsy? There isn't one right answer for these questions. The answers will depend on how comfortable you are talking about epilepsy and how much impact the seizures have on your life.
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Nighttime Seizure Activity: Will Your Family Ever Sleep Peacefully Again?
As nighttime approaches your heart beats faster as your anxiety level rises. “What if a seizure happens tonight? What if no one is there to help?” Whether you are patient or caregiver, the fear of nocturnal seizures can be intensely disturbing.
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Ketogenic Diet Reduces Seizures In Many Children, Hopkins Researchers Find
Johns Hopkins neurologists report that a rigorously high-fat, low-carbohydrate diet not only reduces the number of seizures in children with severe seizure disorders, but also keeps the frequency of attacks lower years after the diet is stopped.
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Giving Medicine to Infants and Toddlers
Your child has just been diagnosed with epilepsy and the doctor has prescribed seizure medicine. But just giving Tylenol or Motrin for a fever now and then has always been a difficult task. How are you going to give two or three doses of seizure medicine every day? Will your child be able to swallow the whole dose? Will he (or she) cooperate and swallow the medicine, will he refuse to open his mouth, or will he spit the medicine out?
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What causes JME to be drug-resistant?
Juvenile myoclonic epilepsy (JME) is not considered a severe condition. If the seizures are not controlled by medication, the doctor may have doubts about the diagnosis, the adequacy of treatment, or about the patient's lifestyle or compliance with the medication regimen. True resistance to the usual medications does happen, however.
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Treatment for JME
Juvenile myoclonic epilepsy (JME) is a common form of epilepsy that usually is easily controlled by treatment with Depakote (valproate) alone. The syndrome usually requires lifelong treatment but with the right choice of medications, people who have JME can live without seizures and without bothersome medication side effects. The usual effective dose for JME is from 500 to 1000 mg of Depakote per day.
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Chanda Gunn: from High Hopes to a Vision for 2008
Chanda Gunn will always be a winner for people with epilepsy. She is a true example of how someone with epilepsy can overcome obstacles. Chanda was the USA Olympic Women’s Ice Hockey goaltender, and bronze medal winner of the 2006 Winter Olympics. We are proud to say that she is also a Spokesperson for the Epilepsy Therapy Project.
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